• https://www.gofundme.com/f/ava-danielle-hernandez

Timothy Charles Schiltz (March 13, 1989 – May 6, 2024), a 35-year-old from the Lake Geneva, Wisconsin area, passed away unexpectedly after seven months of forced Invega Sustenna injections. His mother posted to Facebook about 2.5 months later: "My son died on May 6th of a blood clot in his lungs after receiving monthly injections of Invega for seven months!! He was healthy otherwise. We feel that the drug had something to do with his untimely death 😥"

• https://www.legacy.com/us/obituaries/lakegenevanews/name/timothy-schiltz-obituary?id=55212766

I'm 10 months and 6 days post Invega hoping for a miracle.

How about you guys share you recover stories.

According to the coroner’s report, Peter had regularly complained of side effects he attributed to his "medication," including constipation, insomnia, tremors, odd body movements, and weight gain of "approximately 20 kg." His mother also regularly raised concerns about potential side effects. An expert report noted that his description of side effects was "consistent with akathisia." The report also notes: "In about 2019, Mr Wilson was referred to a neurologist to investigate possible tardive dyskinesia (a drug induced movement disorder), and when his sleep was identified as an issue, he was offered a sleep study." Source: https://www.coronerscourt.wa.gov.au/I/inquest_into_the_death_of_peter_james_wilson.aspx?uid=3955-2080-0-84

August 2025 – 35-year-old Tom Alan Bethell was found dead at The Academy, a supported living facility in Warrington, Cheshire, UK, on August 3, 2025. The medical cause of death was left ventricular hypertrophy, contributed to by the combined toxicity of three substances: paliperidone, the sedative-hypnotic zopiclone, and the anticonvulsant pregabalin. The court heard that Bethell's last injection of paliperidone on July 22, 2025, 12 days before he was found deceased, had been the correct dose. Area Coroner Victoria Davies recorded a conclusion that Bethell's death was due to natural causes contributed to by an accidental polydrug overdose. Source: https://www.warringtonguardian.co.uk/news/25845682.man-35-died-accidental-drug-overdose-academy/

(unclear if LAI paliperidone or oral…) January 2019 – Kori Wharehuihuinga Hussey, a 32‑year‑old New Zealand Māori woman, died between January 10–11, 2019, in what a coroner determined to be a suicide. Toxicology testing after her death identified the presence of paliperidone, but the coroner's report did not specify whether she had been taking oral paliperidone or the injectable version (Invega Sustenna). The investigation into her death prompted a coroner's review of the mental health services she received. Sources: https://www.stuff.co.nz/national/health/131200870/coroner-raises-concern-about-mental-health-care-woman-received-before-ending-life; https://www.nzlii.org/nz/cases/NZCorC/2022/125.html

(cont.)
I took him home and kept him close and the next day I took him to the Mental Health centre. He sat there bleeding on the floor and they asked “what makes you happy Tyson?” He said “Nothing anymore, I just want to die”. They told him to sit in the sun and read a newspaper(apparently distraction techniques), but offered no real help. I took my son home and said he only had to hang on for 3 more days till his Doctor came back then he would surely help us. I cared for my son and with help from his father and his best mate we didn’t leave him alone.
He wanted to spend the night with his mate and I told Tyson we had made it, and that I would pick him up in the morning to see his Doctor. Tyson didn’t answer my calls that morning and I hoped he was still asleep, but the 10 minutes drive was like a nightmare and I found my son hanging from a beam.
I rang 000 and they told me what to do. I cut him down and he hit the concrete as I had no way to hold him. I screamed as I did compressions and even though his tongue was so swollen I managed to do CPR but couldn’t make him breath.
When the Emergency services arrived they tried in vain to save Tyson. They asked when he had cut his wrist and I said 4 days ago, and the young Constable cried with me as they thought they had saved him then. They let me lay with my boy until they had to take him away.
Why isn’t the Police and Ambulance taken seriously when they assess a patient and take them to hospital? They only take the serious risks..... yet they said the patient was usually discharged quicker than they can fill out their paperwork. It is comparable to them taking a heart attack to emergency and them saying, go away now you’re not quite dead yet, come back when you are dead. They must feel so very helpless.
We all suffered terribly with grief but Shannon’s anxiety was overwhelming after losing his little brother. I was so afraid of losing him too but I didn’t know who to trust. I took him to several Private Psychiatrists who, after the initial appointment, and knowing his brother had taken his life, they said their books were full and couldn’t help him.
I remortgaged the house and Shannon agreed to 5 stays in private Hospitals to help him deal with his loss and they offered counselling & drugs but Shannon said there is no drug that can fix losing Tyson. Shannon was found hanging under his house and when the Police arrived they saw the medication he was on and said “this is the worst one”. They told me that 9 out of 10 call outs are suicide related, so something is terribly wrong.
I don’t know how my daughter copes with her grief after losing both of her brothers but her job is to teach the sick kids in hospital. Children as young as 12 are bought in with attempted suicides and she finds helping them her way of saving those we couldn’t save. She is so very dedicated and brave...... I am just a loving mother, I want no blame, and I just have an opened heart and opened arms, and much love to give. I hope to help fix what is broken in honour of all those we couldn’t save, as every death to suicide is one death too many.
Tyson left behind a Journal he put his thoughts into.
I will quote a few apt ones now.
Our purpose in life is to matter...
To count.....
To stand for something....
To have it make some difference that we lived at all....
Is it so small a thing to habe lived...to have loved...to have thought... to have done...
He also wrote...I have tried 1,000 things that don’t work, so now I am that much closer to finding something that does.

Newcastle Magistrate Robert G. Stone discussed the injections on pages 12-13 of the inquest into Tyson's death but concluded they were "not a contributing factor": "The three medical experts who gave evidence at the inquest expressed the opinion that the drug was unlikely to have contributed in any significant way to the development of Tyson’s depressive symptoms… I find that it was appropriate to treat Tyson with Paliperidone; it was reasonable for the treating doctor to have prescribed it and for its continuation at the time of Tyson’s death. There was no adverse evidence given by any expert that the medication was anything other than appropriate and reasonable. It was an antipsychotic drug which had been prescribed at the time of his release from hospital under the community treatment order. That hospital admission had been an involuntary admission when Tyson was very seriously ill at that stage. All the experts have agreed that it was a reasonable decision in light of Tyson’s poor compliance to take prescribed medication. I find that the drug was not a contributing factor in Tyson’s death." Stone did not make recommendations for prevention beyond the individual case: "Recommendations: Not Made."

Incidentally, Tyson committed suicide the same month that Narshe81, a Bluelight user from British Columbia, Canada, started the long-running "Coming off Invega Sustenna (paliperidone)" discussion – 20 days later on Nov. 27, 2013.

My name is Kerrie Mathews; I am a Photographer and live in Newcastle. I gave birth to 3 perfect babies. A daughter and 2 sons and this is my story.
My youngest son, Tyson had ADHD and Epilepsy. He was 6’4” tall, incredibly intelligent, and thought himself invincible. He was a joy to know and was adored by all who knew him, especially his family.
In 2013 after another seizure and hospital stay, Tyson was put on a Treatment order to start on a new anti psychotic medication but this one was 100mls a month, by injection.
He hated what anti psychotics did to his mind, and so was poorly compliant with tablets.
We were not told his first injection was 250mls, or what side effects to watch for, in fact we left hospital knowing nothing about the drug. Within 2 weeks Tyson was showing serious side effects, he had dropped out of his University entrance course in which he was thriving and excelling and even though he was mathematical gifted, he couldn’t even add 2 numbers together. He had started rocking, scratching, and couldn’t drag himself out of bed.
I took him to the Mental Health Centre and as Tyson’s Doctor was away, we saw a new Doctor. He decided to inject Tyson with yet another 150mls of this drug and disregarded his side effects. That made 400mls in the first month. Then the dose was increased to 100mls 3 weekly, and yet this doctor didn’t even know Tyson. I had to trust that it would get better but his side effects worsened with every week. Tyson had no motivation to wash, to eat, or to talk. Under the treatment order we were to attend each 3 weeks to have his injection and each time Tyson was worse. His depression and anxiety was so severe that Tyson’s GP started him on an anti depressant, and hoped it would help as Tyson told her he wanted to die. She had known Tyson most of his life and he was always high and happy. She had never seen him depressed before. She told us to see his Mental Health team as she was very worried. I took Tyson to his Mental Health team 7 times in his last month of life. Each time Tyson told them he wanted to die, he didn’t think his faith in God would stop him taking his life, that he felt hopeless, that he couldn’t live like this anymore, that he felt retarded and finally, that he was willing himself to die. On the last appointment with his case worker, Tyson was still rocking and scratching and now looked 15 years older than his 30 years. He asked Tyson when he had washed last, and Tyson said “I just don’t see the point anymore, I just want to die”. The Case worker said “mate I know it feels like climbing Mt Everest just to wash but please try to have a shower” then he made us an appointment, for the next Thursday when his Doctor came back, but sent us away without help. We were both crying as we walked away and Tyson said they won’t help me mum.
I took him home and held my boy on the lounge to keep him safe. That night he told me he would take a bath, I heard the water running then panicked and ran in to find Tyson cutting his wrist with a Stanley knife. He had cut 9 times and as I took the knife as he begged me to let him die. I called 000 and tried to stop the bleeding and when the Police arrived Tyson ask would they please let him die. They assessed Tyson a serious risk and called the ambulance. They also assessed Tyson a serious suicide risk and told him, he didn’t need to die as they would take him to hospital. I was told to wait at home till I got the call that he had been admitted. I was terribly shaken but thank God that I found him in time. My daughter came and waited with me. I called about an hour later and was told they hadn’t assessed him yet and they would call me. The Risk assessment recorded what Tyson had told them. “I have had enough” “I don’t see the point anymore”, “that he felt total hopelessness, and was afraid, and that he wanted to die”. When the call came it was to tell me Tyson had been discharged. Just over one hour at the hospital before he was sent into the night alone. I was 40 minutes drive away and asked “where is he, he wants to kill himself?”, I was told “I do not know I have discharged him”. I ran to the car and drove there terrified and was so relieved that Tyson answered his phone. I found him outside the emergency department with blood already seeping through his bandages. He said they wouldn’t help me either mum.
(cont.)

• https://coroners.nsw.gov.au/documents/findings/2017/Findings%20-%20Tyson%20Matthews.pdf
• https://www.nine.com.au/australia-news/nsw/nsw-man-died-four-days-after-discharge-20170822-p5vt6r.html

December 30, 2018 – Mathew Leslie McCoy, a 27‑year‑old man who was subject to a CTO that forced him to receive paliperidone by depot injection (Invega Sustenna), as well as oral clozapine and olanzapine, was found dead in a hotel parking lot in Hobart, Tasmania, Australia, on December 30, 2018. Several weeks before his death, his mother observed him have an episode of seizures, after which he asked her to "remember his name" and to remember him – behaviour she thought unusual even for him (it "caused her to wonder if he could feel that his health was failing as it was strange behaviour, even for him"). The coroner concluded that the cause of death could not be determined to a medical certainty, but that there were no suspicious circumstances and death was not due to trauma or suicide. A forensic pathologist indicated the most likely cause was cardiac arrhythmia in the setting of "schizophrenia" and antipsychotic drugs interacting with alcohol. An inquest was held because of his status under a Treatment Order.

• https://www.magistratescourt.tas.gov.au/__data/assets/pdf_file/0010/642925/McCoy,-Mathew.pdf#1%231)

January 11, 2019 – Andrew Jeffrey Rich, a 29-year-old Wisconsin man, died by suicide while under court-ordered Assisted Outpatient Treatment (AOT) following a breakdown in May 2017. He was required to receive regular injections of Invega Sustenna under Wisconsin's Chapter 51 commitment law. Over approximately 18 months, recommitment orders were repeatedly extended on the basis that he denied having a mental illness and would likely stop "medication" if released, despite his psychiatrist acknowledging no observed psychotic symptoms during that period and Rich living and working independently in the community. Rich reported severe side effects from the injections, including emotional blunting and loss of physical sensation. Following a final recommitment order in December 2018, he died by suicide on January 11, 2019, at age 29. His mother, attorney Elizabeth Rich, founded the nonprofit Andrew's V.O.I.C.E. (Victory Over Involuntary Commitment Excesses) to advocate for mental health law reform.

• https://www.madinamerica.com/2019/07/twenty-years-kendras-law-case-aot/
• https://www.madinamerica.com/2022/09/attorney-rich-unjust-commitments/

2019 – Tuva Andersson, a 37-year-old woman died by suicide in her apartment where she lived alone in Sweden. She had been forcibly administered paliperidone palmitate depot injections at a forensic psychiatric facility without a confirmed psychotic diagnosis, over her explicit objection. Documented adverse effects included severe muscle stiffness, loss of motor function, and marked cognitive deterioration, which treating clinicians attributed to her underlying condition rather than the medication. An additional medication for Parkinsonism was added rather than the paliperidone being reduced. Andersson had studied mathematics at university, was artistically gifted and had no psychotic symptoms. Her documented primary problem was anxiety. A post-mortem assessment by an independent psychiatrist retained by the regional insurance authority concluded that her care had been deficient and that her death was likely caused by failures in her treatment. An official post-mortem report by a regional chief physician noted that the period of forensic psychiatric care had devastating consequences the patient never recovered from.

• https://www.madinamerica.com/2023/07/tuva-andersson/

(contd.)
January 16,2023 (THIRD SUICIDE ATTEMPT) He told my mom he was going to walk down to his apartment and take a shower etc... only for my mom to get a call from a family friend who is a firefighter that Jason was getting ready to be lifeflighted because he had went down and laid in the railroad tracks and had his left arm taken completely off clear up to the shoulder... he said he had his head on the tracks then at the last minute he moved his head but kept his arm there and after it cut his arm off he got up and walked over to the police station. After all his surgeries for his arm he was taken to William R Sharp Jr Hospital Mental Ward for 2 1/2 months.
8/1/2023 He was very nervous said he didn't feel good was dizzy. He said he can't live like this anymore and started walking from the house and my mom told him to get back here and he wouldn't so my mom called 911 for police to pick him up and and she went to the hospital to file a 302 while I followed him on foot until the cops picked him up because we wasn't sure where he was heading that night because he was heading in the direction of the bridge the night. He again was admitted to Penn Highlands (Highlands Hospital) where while he was in the ER he got a nurse in a head lock because he wanted the cops to shoot him (FOURTH SUICIDE ATTEMPT) so the hospital filed a 303 and he was kept 20 days they talked about putting him in the old YMCA om the South Side which is some type of home and we expressed our concern that he needs to be in a locked facility because if not the first chance he gets to escape he's going to and he's going to do something to himself. So they said they'd see what they could do. So basically what they came up with is releasing him with stipulations of him allowing this special team to come into his house 5 days a week and they'd do his meds and take him to appointments etc. (How this is any better I have no clue like he needed a LOCKED FACILITY WITH SUPERVISION and we expressed this. Then they told us the team was able to start til September 4th but they were going to release him now and my mother and I both spoke up and said that not a good idea and my mom told them she cant do this but they didn't care and proceeded with the release process anyways.
PLEASE SHARE SHARE SHARE THIS SO THIS DON'T HAPPEN TO ANYONE ELSE."

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A few deaths due to paliperidone palmitate found in official medical case reports:

• A 2017 case report details the severe, prolonged episode of drug-induced parkinsonism in a 68‑year‑old man that ultimately led to his death roughly five months after receiving two injections of paliperidone palmitate (234 mg followed one week later by 156 mg). The authors state that "practitioners should be cognizant of the potential long‑term consequences of paliperidone LAI." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6007667
• In 2019, it was reported that a 33-year-old man died after a single injection of 819 mg of Trevicta (paliperidone palmitate three-monthly injection), with paliperidone poisoning appearing to be the highly likely cause of death: https://www.researchgate.net/publication/337356064_Death_following_an_intramuscular_injection_of_paliperidone_A_case_report
• A 2021 case report documented a 72‑year‑old woman with Lewy body dementia who developed fatal neuroleptic malignant syndrome (NMS) after receiving a single 156 mg intramuscular injection of paliperidone palmitate; she remained comatose and died following a prolonged hospital course after palliative care measures were initiated: https://onlinelibrary.wiley.com/doi/10.1155/2021/8879333

On August 25, 2023, his sister Kasi posted to Facebook that he was missing: "MY BROTHER Jason Staley IS MISSING ... IF ANYONE HAS HEARD OR SEEN HIM PLEASE CONTACT ME ASAP". On Saturday, August 26, 2023, his body was found in the Youghiogheny River in Connellsville, midway across the river in the water. The coroner was called to the scene around noon that day, and the coroner's office confirmed the drowning on Sunday, August 27: https://www.wtae.com/article/connellsville-yough-river-coroner-fayette-county/44917256. On August 30, 2023, his sister posted to Facebook the following:

There are also lengthy discussion threads on the Schizophrenia.com forum, one of which spans 2014-2018 and is titled "Has anyone came off of invega sustenna?": https://forum.schizophrenia.com/t/has-anyone-came-off-of-invega-sustenna/16415

At the very least, this material should be the subject of research papers. "Quite a few researchers have used data from internet forums to investigate psychiatric drug harm. This is an FDA-recognized method called 'social media listening' (SML) or netnography, used to capture real-world patient experiences that often go unreported in clinical settings." A few examples:

• Adele Framer, founder of the peer-support forum SurvivingAntidepressants.org (where she posted under the username "Altostrata"), in 2020 co-authored (with Michael P. Hengartner, Lukas Schulthess and Anders Sorensen) a research study published in the journal Therapeutic Advances in Psychopharmacology titled "Protracted withdrawal syndrome after stopping antidepressants: a descriptive quantitative analysis of consumer narratives from a large internet forum," which analyzed 69 individual reports of protracted withdrawal (also called prolonged antidepressant withdrawal or PAWS) sourced from patient narratives posted on her forum: https://doi.org/10.1177/2045125320980573
• Mad in America reported on a 2021 study titled "Patient perspective of tardive dyskinesia: results from a social media listening study," published in the journal BMC Psychiatry, that explored the emotional and social impact of Tardive Dyskinesia (TD), which its core finding being that TD is "emotionally devastating": https://www.madinamerica.com/2021/10/manufacturer-tardive-dyskinesia-td-drugs-finds-td-emotionally-devastating/ "The FDA-recognized method of SML was used to analyze freely available online content to understand patient experiences. A search (using artificial intelligence or AI) was performed for English-language posts on social media platforms, blogs, and forums from March 2017 to November 2019. A commercial analytics platform (NetBase™) was used to identify relevant posts. This yielded 261 potential posts, of which 107 were manually curated for final analysis. The 107 posts (primarily from forums (47%) and Twitter (33%)) were analyzed to determine sentiment (positive, negative, neutral) and key themes using a thematic analysis approach. However, the study's value is heavily tempered by the significant conflict of interest (COI), as all authors were employees of a company that profits from treating TD. Their direct involvement in study design and data analysis introduces a potential risk of bias, a fact that the MIA article strongly emphasizes." (All four authors—Mallory Farrar, Leslie Lundt, Ericha Franey, Chuck Yonan—were employees of Neurocrine Biosciences, Inc., a company that makes the drug Ingrezza (valbenazine) for treating TD, at the time of publication.) Nevertheless, this study is the first to apply SML to understand TD, "successfully capturing real-world, unsolicited patient experiences that can be missed in structured clinical settings."
• One of the earliest studies to systematically analyze online reports of persistent withdrawal symptoms and psychopathology (i.e. publicly available patient anecdotes from websites), was "Patient Online Report of Selective Serotonin Reuptake Inhibitor-Induced Persistent Postwithdrawal Anxiety and Mood Disorders" (2012) by Carlotta Belaise, Alessia Gatti, Virginie-Anne Chouinard, and Guy Chouinard: https://karger.com/pps/article/81/6/386/282690; symptoms were reported to last for a median of 2.1 years

1. Require Black Box Warnings to Explicitly Name Akathisia: This petition calls for the word "akathisia" to be explicitly added to black box warnings on medications that can cause it. Akathisia is a severe, often unrecognized neuropsychiatric movement disorder tied to suicidality and homicidality. Without clear labeling, many people don't recognize the symptoms until it escalates. In one Facebook support group alone, over 100 members have taken their own lives since 2014.
   🔗 https://www.change.org/AkathisiaWarning
   
   
2. Protect Our Most Vulnerable: In memory of her mother Brenda, who died after being given a 970 mg injection of Invega—far exceeding the FDA‑approved maximum of 234 mg—Heather McNeal is advocating for the McNeal Mental Health Patient Protection Act. The Act would ban overmedication beyond FDA guidelines without double‑physician approval, enforce due process before psychiatric commitments, mandate informed consent for Black Box medications, and penalize facilities for violations. Heather writes: "Her death was not inevitable, it was preventable. Her life mattered. Her death must bring change!"
   🔗 https://www.change.org/p/protect-our-most-vulnerable
   
   
3. Cassandra Fameux – a Haitian Immigrant Chemically Tortured and Denied Justice: Cassandra was injected with Invega Sustenna for nearly a decade despite not having schizophrenia or bipolar disorder. She survived but has suffered a brain tumor, heart condition requiring a loop monitor implant, diabetes and infertility as a result of the monthly injections. This petition calls for accountability and legal action.
   🔗 https://www.change.org/p/cassandra-fameux-a-haitian-immigrant-chemically-tortured-and-denied-justice
   
   
4. Petition for Change in the Mental Health System and Psychopharmacology: Drafted by Rich (in his 5th year of protracted withdrawal) and Amanda (in her 3rd year), this global petition seeks to raise awareness of severe consequences from psychiatric medication use and withdrawal—including protracted withdrawal syndrome, akathisia, PSSD, tardive dyskinesia, and others. Rich notes that signatures have slowed and they need a few more to support their next mailing to decision makers and the media. "By using our collective voice, we can help bring about the changes so desperately needed in our mental health system."
   🔗 https://www.change.org/p/petition-for-change-in-the-mental-health-system-and-psychopharmacology